Chase's Story - http://www.pierrerobin.com Personal account of one child's experience of this condition. Includes photographs.
NORD - Pierre Robin Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome Sample report, plus links to organisations. [Fee required for full report]
Pierre Robin Network - http://www.pierrerobin.org Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.