Cystinosis Clinical Resources - http://cchs-dl.slis.ua.edu/clinical/metabolism/inborn/lysosomalstorage/membranetransportdisorders/cystinosis.htm Portal features annotated links for health professionals.
Cornea and External Diseases - Cystinosis - http://dro.hs.columbia.edu/cystinosis.htm Features photographs of an affected eye, information on clinical features and treatment.
Cystinosis Research Foundation - http://www.natalieswish.org Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.
EyeRounds.org: Cystinosis - http://webeye.ophth.uiowa.edu/eyeforum/cases/case4.htm Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment.
Cystinosis Central - http://medicine.ucsd.edu/cystinosis/INDEX.htm Information about this disorder, conferences, data for physicians, updates and links.
The Cystinosis Foundation UK - http://www.cystinosis.org.uk Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.
Cystinosis Research Network - http://www.cystinosis.org Information about the organization and their mission. Includes database about the disease as well as support groups, research and links to other resources.
Cystinosis Foundation - http://www.cystinosisfoundation.org Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
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