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Rare Disorders
Directory > Health > Conditions_and_Diseases > Rare Disorders
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| Health > Conditions_and_Diseases > Genetic_Disorders (606) |
  For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. |
Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching. |
Offers an Internet portal. Includes news, forums, rare disease and orphan drug information and registration forms |
An article and case study of this rare disease. Includes links. |
Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe. |
Information about growth-related disorders through education, research, and advocacy. Member driven organization. |
A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. |
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. |
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. |
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