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 Mackenzie and the Diagnoses of Epilepsy - http://bethy767-ivil.tripod.com/ Explains how epilepsy was diagnosed in this little girl. Offering journals on their journey, information about the ketogenic diet and epilepsy signs and symptoms. |
 Baby Bryant My Hero - http://www.freewebs.com/bryanttel/ Bryant Lee Weasel's story about his struggle with Dravet Syndrome. |
 Our Pyridoxine Dependency Story - Epilepsy and Vitamin B6 - http://www.angelfire.com/amiga2/jenniz/ A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys. |
 KIDZ - http://kidz-unexpectedjourney.blogspot.com/ Parents of Chloey share their daughters story of having infantile spasms. Includes videos of Chloey's seizures and photographic slide shows. |
 Dangerously Rare: Dravet's Syndrome - http://dangerouslyrare.blogspot.com/ Anna is a student at UNC-G majoring in Speech Pathology. Here she explores the intricacies of this condition. Analysing an article titled "Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy." |
 Jacob's Infantile Spasms - http://www.netnomad.com/is.html See how Jacob bet the odds by not meeting the poor prognosis expected with this usually debilitating condition. |
 Understanding Epilepsy - http://community.webtv.net/MzMinnieMouse/Understanding Explains the disease, its symptoms and treaments, as well as providing first aid and safety advice. |
 Infantile Spasms - Broc's Story - http://www.infantilespasms.com The story of Broc Bartenhagen who was diagnosed with Infantile Spasms. A summary of tests performed, treatments and tried therapies. |
 Epilepsy Health - http://www.epilepsyhealth.com/ Author Sally Fletcher shares the complementary practices that have helped her remain seizure free for 18 years - without medication. |
 Growing Up With Epilepsy - http://library.thinkquest.org/J001619 Two fifth grade students in NYC Public School 56 designed a site on epilepsy based on the personal experiences. |
 Epilepsy Foundation: Heroes Among Us Directory - http://www.epilepsyfoundation.org/eCommunities/heroes/directory.cfm Over 600 personal stories of those effected by epilepsy. Describing their fears, courage and triumphs. |
 Infantile Spasms and Surgery: Alex's Story - http://www.geocities.com/HotSprings/Oasis/9766/ Follow this families fight against epilepsy. Explore how radical brain surgery gave this little boy a second chance at a normal life. |
 Julie Dennison: Living with Epilepsy - http://www.livingwithepilepsy.org.uk A sufferer from epilepsy all her life, Julie now lectures and writes on the subject. Samples of her work are included on the site. |
 A Miracle for Alex - http://www.amiracleforalex.org Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources. |
 Hannah's Story - http://www.hannahsstory.net/ Providing information, links and poetry dedicated to Hannah's struggles with Lennox-Gastaut Syndrome, a debilitating form of epilepsy. |
 Walking for epilepsy - http://www.galixy.net/KB2002/KB.htm Chronicles the journey of Karla Brown as she walks 9000 miles across America to raise awareness of epilepsy. |
 Hope for Sydney - http://www.HopeForSydney.com The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids. |
 Crazy For Cody - http://www.crazyforcody.com/ Cody has infantile spasms, a particularly nasty epilepsy starting in infancy. See video's, the photo gallery, treatments tried and support resources. |
 A Dream for Sarah - http://www.adreamforsarah.com Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet. |
 Shazza's: Dealing with Dravet Syndrome - http://shazzas.info A parent of a child with Severe Myoclonic Epilepsy of Infancy shares her experiences with the condition. Offering activities for the kids, epilepsy events and a laymen's description of Dravet's. |
 Experience Project: I have Epilepsy - http://www.experienceproject.com/groups/Have-Epilepsy/21836 Personal life stories from those who experience epilepsy and seizures. |