Association for Spina Bifida and Hydrocephalus - http://www.asbah.org UK website containing a large selection of informational articles and provides information about current research projects being funded.
Spina Bifida Association of America - http://www.sbaa.org/ Voluntary health agency dedicated to education, advocacy, research and service. Has a presence in more than 125 communities nationwide.
International Federation for Spina Bifida and Hydrocephalus - http://www.ifglobal.org/ World-wide umbrella organisation. Aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers.
Spina Bifida Association of Kentucky - http://www.sbak.org/ Educates, supports those affected, and strives to prevent this birth defect. Includes programs and member activities, a calendar of events, volunteer opportunities, a newsletter and membership information. Located in Louisville.
Australian Spina Bifida and Hydrocephalus Association - http://www.asbha.org.au National organization acting as the peak body for information and support. Provides opportunity to email questions to an expert, fact sheets and contact information.
Spina Bifida and Hydrocephalus Association of Ontario - http://www.sbhao.on.ca Offers support and research into the causes and treatment. Includes FAQ, Medical Information, details of events and research programs.
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