NORD - Cornelia de Lange Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Cornelia%20de%20Lange%20Syndrome Offers the synonyms, a general discussion and further resources.
My Life and CdLS - http://geocities.com/kangagurl_63/ About Stephen, born in 1971, with information about his life from his birth to the current time.
Jessica's Place - http://www.geocities.com/Heartland/Meadows/8874/ About the author's daughter who has Cornelia de Lange Syndrome. Information on CdLS, updates on Jessica's progress and support links.
The CaF Directory - http://www.cafamily.org.uk/Direct/c72.html A description of Cornelia de Lange syndrome, its inheritance patterns and pre-natal diagnosis.
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