NORD: Sturge Weber Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sturge%20Weber%20Syndrome Offers a list of synonyms, a general discussion and further resources.
The Sturge-Weber Foundation - http://www.sturge-weber.com/ A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.
Sturge-Weber Syndrome Center - http://www.neuro.jhmi.edu/HopkinsSWSCenter/index.htm Clinical center dedicated to the treatment and study of SWS at Johns Hopkins Hospital in Baltimore. Find disease information, diagnosing, and treatment as well as details about the facility.
Help build the largest human-edited
directory on the web.