The Ectodermal Dysplasia Mailing List - http://hometown.aol.com/charliein/ed/home.html Includes instructions on joining the list, FAQs and links to further resources.
National Foundation for Ectodermal Dysplasia - http://www.nfed.org/ ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
NORD: Ectodermal Dysplasias - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias Offers synonyms, a general discussion and resources.
Ectodermal Dysplasia Society - http://www.ectodermaldysplasia.org/ Information about the organization as well as the ED condition. Includes links, news articles and contact details.
The Andy Fund - http://www.andy.org.mx Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
The CaF Directory - http://www.cafamily.org.uk/Direct/e14.html Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
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