 Irri Shark's Page - http://hometown.aol.com/irrishark/page/index.htm About the '65 roses' story. |
 Cystic Fibrosis: Therapeutic Options for Co-management - http://www.thorne.com/media/cysticfibrosis.pdf Illustrated article details causes, symptoms, treatment, prognosis, and other effected systems. |
 Cystic Fibrosis Links - http://www.goodgulf.com/cystic.html Cystic Fibrosis Links and Information |
 CysticFibrosis.com - http://cysticfibrosis.com/ Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events. |
 Cystic Fibrosis Resource Center - http://www.healingwell.com/cysticfibrosis/ Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards. |
 A-Z Directory of Cystic Fibrosis Resources - http://www.cellscience.com/CFmain.html Biomedical directory with listings of hospitals, charities, research, and information by topic and location. |
 Home Page-Harminder - http://student.biology.arizona.edu/honors96/group9/Page2.html Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true. |
 Cystic Fibrosis Health FactSheet - http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format |
 MyCysticFibrosis.com - http://www.mycysticfibrosis.com Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team. |
 Cystic Fibrosis Resource Centre - http://www.cysticfibrosis.co.uk A source of information for cystic fibrosis patients, parents, doctors and other carers. |
 Cystic Fibrosis Medicine - http://www.cysticfibrosismedicine.com Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family |
 The Breathing Room - http://www.thebreathingroom.org Guidance about the art of living with cystic fibrosis. |
 Pulmozyme.com - http://www.pulmozyme.com Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc. |
 MedlinePlus: Cystic Fibrosis - http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html A source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF. |
 CF Prescriber - http://www.cfprescriber.com/ Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease. |
 The Spirit of Lo - Inspirational Book - http://www.spiritoflo.com Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child. |
 Jewish Genetic Diseases - Cystic Fibrosis - http://www.mazornet.com/genetics/cystic_fibrosis.asp Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening. |
 eMedTV - http://cystic-fibrosis.emedtv.com/ Learn through medically written and reviewed articles about the causes, common symptoms, treatments and the role of genetic testing for Cystic Fibrosis. |
 YourLungHealth.org : Cystic Fibrosis - http://www.yourlunghealth.org/lung_disease/cystic_fibrosis/index.cfm Explains this complex disease, including symptoms, causes, diagnosis, current treatments, prevention, and links to additional information. |
 Clayton Bates Cystic Fibrosis Support Site - http://www.claytonbates.org For family, friends, and other supporters to find out about the disease and offer support for Clayton. |
 Cystic Fibrosis Western Australia - http://www.cysticfibrosis.org.au Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. |