  Living with Chronic Illness - http://aces_autoimmune.tripod.com/copingb.htm
Personal advice on making adjustments and maintaining hope. |
Health Issues Unmasked - http://healthissuesunmasked.wordpress.com
A weblog dedicated to exploring the issues behind the diagnoses, the statistics, and behind the headlines on chronic illness, health policy, and complementary and alternative medicine. By a journalist, Jacqueline L. Jones. |
Chronic Illness - http://chi.sagepub.com/
Journal providing a forum in which researchers from a wide range of disciplines, clinicians, policy makers, and people living with chronic illness come together to clarify the common principles underlying the experience and management of chronic illness. Has current and past issues. |
It's Your Life - http://www.stormpages.com/sbhagwat
E-book on chronic disease management available for free online reading or download. |
A Day in a Life with Chronic Illness - http://members.shaw.ca/zonaszone/illness/life.html
A personal account of daily events aims to promote better understanding. |
Chronic Illness Coping - http://www.mindpub.com/topic16.htm
Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques. |
Yoga For Chronic Illness - http://www.cancerlinks.com/Yoga/illness.html
Article explains how yoga helps to maintain and restore health by stretching and breathing. |
Learning to Live with a Chronic Condition - https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series. |
Guidance for People Facing Serious Illness - http://www.mywhatever.com/cifwriter/library/mortals/mor0.html
Handbook gives short, practical advice how to handle serious illness and dying. |
Living with Chronic Illness and Disease - http://www.chroniclife.com
Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories. |
Coping with Chronic Illness - http://www.alpineguild.com/COPING%20WITH%20CHRONIC%20ILLNESS.html
An academic paper discusses illness in terms of stages, with a description of each in terms of its relevance to patients. |
Ten Steps for Coping with a Chronic Condition - http://www.health.harvard.edu/newsweek/10_steps_for_coping_with_a_chronic_condition.htm
Harvard Health Publication Letter. Patient oriented advice. |
Stanford Self-Management Programs - http://patienteducation.stanford.edu/programs/
Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California. |
Health Action Network - http://www.procovery.com
A volunteer non-profit organization helping to rehabilitate people with chronic mental or physical illness into the community. Includes details of training and resources. |
Report of the Working Group on Long-Term Care - http://www.dol.gov/ebsa/publications/report2.htm
US Department of Labor, Advisory Council Report to recommend policy changes and education on broad scope of findings. |
Managing Long Term Conditions (Chronic Disease Management) - http://www.natpact.nhs.uk/cms/2.php
A National Primary and Care Trust Development Funds program aimed to produce personalized care plans involving all medical and associated disciplines. No longer updated, it still contains valuable information for health care professionals. |
Expert Patients Programme for Long-term Patients - http://www.expertpatients.nhs.uk/
Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views. |
Poem, Pain Management, Chronic Illness - http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/pain.html
Poem about coping with pain using relaxation and imagery. |
Coping with a Chronic Illness in your Family - http://www.eldercareadvocates.com/pages/art22.htm
Advice to family members, including communication, financial matters, independence and taking charge. |
Household Management Questions for Others with Chronic Illness - http://www.thenewhomemaker.com/node/68558
Practical advice on adjusting expectations, cleaning, time management and recommended books. Short thread in The New Homemaker. |
Patient Self-Management - Chronic Disease Care - http://www.chcf.org/topics/chronicdisease/index.cfm?subtopic=CL613
Overview of research and publications showing evidence patient self-management interventions lead to improved health status, increased patient satisfaction and reductions in hospital and emergency room costs, listed by the Californian Health Care Foundation. |
Chronic Disease: Forming Healthy Relationships - http://www.buchholzmedgroup.com/articles/PDF/Chronic.pdf
Advice for doctors and health workers on treatment and support of chronic ill patients. |
Chronic Illness Alliance Inc. - http://www.chronicillness.org.au/
A representative body for Australian organizations. Promotes details of campaigns and activities, and offers news, articles and information. |
Learning to Cope with Chronic Illness - http://seniors-site.com/coping/chronic.html
Practical advice to patients and significant others. |
Coping with Chronic Illness - http://www.fathersnetwork.org/647.html?page=647&SESSION=ab227735c199fab81f0a5e757533e8d4&s=0
The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease. |
Center for Research on Chronic Illness - http://nursing.unc.edu/crci/
Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people. |
Chronic Disease Management - http://www.calgaryhealthregion.ca/cdm/
Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details. |
Improving Chronic Illness Care - http://www.improvingchroniccare.org/
Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems. |
Preventing Disability in the Elderly With Chronic Disease - http://www.ahcpr.gov/research/elderdis.htm
Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002). |
Chronic Illness Tips - http://showcase.netins.net/web/fmd/chronic/
A personal account of strategies for daily living. |
Chronic Illness: Acceptance Is the First Step Toward Healing - http://www.mult-sclerosis.org/news/Oct1999/AcceptingChronicIllness.html
Short description of the day to day acceptance process. |
Diet, Nutrition and the Prevention of Chronic Diseases - http://www.who.int/hpr/NPH/docs/who_fao_expert_report.pdf
Combined World Health Organization and Food and Agriculture Organization expert report on prevention of obesity, diabetes, cardiovascular diseases, cancer, dental diseases and osteoporosis. |
Illness, Disability and Social Inclusion - http://www.eurofound.eu.int/publications/files/EF0335EN.pdf
Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. |
Coping with Chronic Illness - http://www.nlm.nih.gov/medlineplus/copingwithchronicillness.html
Offers links to patient information and publications by the National Institutes of Health. |
Chronic Disease Prevention - http://www.cdc.gov/nccdphp/overview.htm
Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state. |
Preventing Chronic Disease: Public Health Research, Practice and Policy - http://www.cdc.gov/pcd/
A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF. |
Biotoxin Illness - http://www.biotoxin.info
Ritchie Shoemaker, MD and his research team share new peer-reviewed medical research and clinical treatment protocols along with an online screening test for biotoxin illnesses such as CFIDS, Fibro and Lyme. |
Living with Long Term Illness - http://www.xs4all.nl/~nvwagen/english/
Tips and ideas on dealing with a chronic condition in daily life. Personal site. |
Chronic Disease: Prevention and Management - http://www.cdmcalgary.ca
Calgary Health Region to host its second international conference from October 29 to November 1, 2007. Registration opens October 2006. |
Managing your Chronic Illness - http://www.healthservices.gov.bc.ca/cdm/patients/managing.html
British Columbia's patient information with links to programs. |
Next steps after your diagnosis: finding information and support - http://www.ahrq.gov/consumer/diaginfo.htm
Consumer health information for people with a disease or chronic condition on how to obtain reliable treatment information by the Agency for Healthcare Research and Quality (USA). |
Palliative Care Council of South Australia - http://www.pallcare.asn.au/
Resources to comfort, relieve pain and distress for people who are dying, and to support parents, families and friends in approaching death and healing grief. |
Chronic Disease Management - http://www.healthservices.gov.bc.ca/cdm/
British Columbia resources for physicians, patients and researchers. Includes success stories, self-management program, reports, research and Chronic Care Model. |
